For families like the Koesters, health care is more than just politicians arguing on cable news. In the year after the kidney transplant, Emily was diagnosed with stage 3 lymphoma, had her lymph nodes removed from her neck as well as her adenoids, and started chemotherapy. During that same period, she was diagnosed with an extremely rare form of dwarfism called Schimke immuno-osseous dysplasia (SIOD), which is also fatal. At the time, Erin says, the family was covered […]

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